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Showing posts from March, 2023

Shriners, muscle spams, and cast removal

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 Good evening to all! We've been fairly silent the last few days but I will try my best to give a accurate picture of what's been happening. It's been one of the most stretching times of my life, but God has given me so many blessings in the midst of it all!  Dominic's cast was put on last week on Friday, 5 days ago. He adapted well in the beginning but after a day or so he started having some real muscle spasms especially at night. He would wake up screaming and throwing his leg around and clearly in pain. We normally gave him oxycodone and that would usually help with the spasms and he'd be able to sleep good after that. It will tear up a mama heart to watch your child go thru that.  Monday took us to Shriners to pick up his KAFO (knee-ankle-foot orthotic) for his left leg. We have about 3.5 hours to Shriners in Greeneville, SC and on the way down there he dozed off and woke up minutes later in spams again. We gave him oxy a few times that day but it never seemed ...

Ex-fix removal surgery

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This morning found us at the hospital bright and early at 6 am. Registration and pre-op exams went smoothly and by 8 am Dominic was being wheeled back for the surgery to remove the fixator and Dr Standard also wanted to check on his big toe on the right foot to possibly straighten it during surgery. He ended up not doing anything to it because he was afraid it would hinder the movement that Dominic has with his toe and will need for walking.  Justin went back to the OR with Dominic and I was told he fought the mask a bit when they were trying to put him to sleep. It didn't take real long and he was out!  About an hour and 20 minutes later we were called back to the PACU unit and Dominic was out of surgery but hadn't woken up yet. We waited another 45 minutes until he woke up. This time they tried to make so he wakes up slowly since it had not gone so well the last time. When he had the surgery to put on his fixator he woke up crying and could hardly be consoled. It had taken u...

pre-op fixator removal surgery

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 Hello to all!  It's been a while since we updated on here. Weeks flew by as we learned to deal with Dominic's fixator and how to properly care for him. It was not without it's trials but mostly we could continue on normally with life. He had two rounds of pin site infections and he took alot of care over that time. The last few weeks he's been really confident with his leg and it took alot for it to hurt him. He took tumbles off the bed and couch recently and just wanted to do it again! We all learned to fear his fixator, especially his sisters, when Dominic got in his crazy moods of throwing that thing around and crawling all over us.  On February 24 we took xrays on Dominics leg and were so excited to hear these words from Dr Standard- "It is time for removal." They scheduled us for March 10 and that seemed far away at the time but here we are!  This evening we had the privilege to meet up with sweet little Phillip and his family. Phillip had the same surge...