Released!

  Wow! This is a miracle! To be released the day after surgery is not very common but he has done so well and many people have prayed. 
We were released from the hospital at 6:30 pm and moved down to our room in the hotel here on hospital campus so we are still close-by. We now have our own space and no nurses to disturb our “currently” sleeping little man. He also slept fairly well last night but a hospital room is never a very comfy place to sleep. 

This is some of the things he did today. His pain has been fairly manageable with Tylenol and Oxycodone on a regular schedule. The pic in the wagon gives you an idea of how a little guy looks when he’s doped on pain pills. But he also has moments of being pretty happy and playful. 

Also many moments like these! (And the lolipop was sugar-free)

These are the best pics I have currently of the frame. This is the bottom ring and there is one more that goes around his leg right below his knee. The frame will be on for about 3 months and than he’ll be in a cast for another month. And yes the one little toe that he had on that foot was removed. It seemed too prone to being problematic later on so they removed it during the surgery.
Some answers to a few questions that have come:
Yes he will be able to get around and stand on this frame. Once the pain is much less and he gets used to lugging this heavy thing around, he should be able to do all the things he did before. 
What is the plan with his other leg??
Since it is so much shorter he really can’t learn to walk on his own. The plan is to get his left foot into some kind of prosthetic fitting/lift that will even out the length of his two legs and allow him to start walking, but that probably won’t happen until he is out of his cast.  Dr Standard did tell us that his left knee appears to be functional however there is no real ankle. The tibia in his leg just kind of ends near his foot. At this point it seems like some type of amputation will probably happen on that leg. 
We will be in Baltimore until at least Monday for the scheduled checkup and than be able to go home. We feel the love and prayers. Justin


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