Meet Dominic!

 I am starting this blog 5 days before Dominics first surgery. We are going to Sinai hospital/International Center for Limb Lengthening in Baltimore on Monday, Oct 17. Pre-op will happen monday afternoon and surgery will be on tuesday. Now what kind of surgery and how did we end up here. Fibular Hememilia (FH) is a limb deficiency that affects the legs with different levels of severity. Both of Dominics legs are affected but the left one seems to be a bit worse than the right. After he was born he was a normal healthy child and there was no hurry to fix his legs until he was a bit older. At the beginning of march we made a trip to Shriners Hospital in Greenville SC, and were told by the Dr. there that we should likely consider amputation of both legs. At the time it seemed like the only good and reasonable option due to the fact that many procedures that we read and heard about were painful lengthenings and multiple surgeries that children went through throughout their childhood and into their early teens. Not something we wanted for Dominic. It seemed those that amputated had a better and less painful childhood and could do just as much as a normal child. We then decided to go see Dr. Standard at ICLL in Baltimore. We had heard good things about him on a FH facebook group and decided to make an appointment for a consultation. During our visit the dr spent some time looking at previous xrays that we had of Dominics legs but he mostly spent a lot of time talking and giving us hope that dominics legs could be saved. His level of confidence was very appealing and he felt like it would be good to fix Dominics right leg first. He was very sure that he could get him a functional and stable leg, ankle, and foot. Fast forward to now thurs, Oct. 13 and we are gearing up for the trip to Baltimore on Monday. Surgery day is Tuesday! Thanks for your prayers! Justin & Jess



                                    Surgery will be on his right leg and ankle


Comments

  1. Aloice JumaOctober 15, 2022 at 12:35 PM

    May the Almighty God,walk with Dominic through his journey.The little angel must arise again in Jesus name.John,be rest assured of My prayers.

    ReplyDelete

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