Dominic's journey

The covid test that Dominic did yesterday came back positive😯 We are very disappointed but surgery will need to be rescheduled for a later date. He really didn’t have any symptoms but they did not give us the option to retest and the good news is we don’t need to test again the next time we come. It’s all a bit strange but we know Gods plan is best and we try to rest in that. Surgery is rescheduled for Dec. 7. Thanks for your prayers on this journey of unknowns. Justin

 Baltimore always welcomes us with someone tooting their horn before we even get to the hospital.😏 We were turning left at a stoplight with two lanes of traffic turning the same direction. Apparently we were too slow for the impatient lady behind us and we heard that first BEEEEEP! of an impatient city driver. As she rapidly went around us in the other lane, we saw that her car had a bumper sticker that read.. "Be Patient".😧   We arrived at the hospital around 1:00. Dominic had his first covid test ever but he didnt seem to mind too much. After the covid test we met with one of the nurses for the pre-op. Mostly it consisted of info regarding surgery day tomorrow. Ill try to explain just a bit. The bow in his leg will be fixed by making a cut in his tibia and attaching an external fixator on his leg that will be turned over a period of time to straighten his leg. Ill be sure to attach pics of that after surgery. There will also be a cut somewhere near his ankle and a bone gr...

 I am starting this blog 5 days before Dominics first surgery. We are going to Sinai hospital/International Center for Limb Lengthening in Baltimore on Monday, Oct 17. Pre-op will happen monday afternoon and surgery will be on tuesday. Now what kind of surgery and how did we end up here. Fibular Hememilia (FH) is a limb deficiency that affects the legs with different levels of severity. Both of Dominics legs are affected but the left one seems to be a bit worse than the right. After he was born he was a normal healthy child and there was no hurry to fix his legs until he was a bit older. At the beginning of march we made a trip to Shriners Hospital in Greenville SC, and were told by the Dr. there that we should likely consider amputation of both legs. At the time it seemed like the only good and reasonable option due to the fact that many procedures that we read and heard about were painful lengthenings and multiple surgeries that children went through throughout their childhood an...